In the early hours of Friday morning Jacob woke up wanting pasta salad. And a rice crispy treat. And chips and salsa. And a bowl of Chex cereal. And a slice of turkey. And finally a sugar cookie (the last of which I gave him so that he would go back to bed).
As you can see, his steroid cravings continue. The Dex (short for Dexamethasone) make him extremely hungry and make it difficult to sleep. So the 4am food fest is a common occurrence at our house.
But it’s not just in the middle of the night; for breakfast on Monday Jacob had 2 waffles, one and a half hamburger patties dipped in ketchup (no bun, just ketchup), 2 pickles, 2 bowls of Honey Bunches of Oats cereal and a cookie.
Yesterday he was in tears because he wanted more pasta salad. My mom was here so I ran to the store to get the supplies. I rushed home, made the scrumptious salad and then he wanted pop tarts. Of course, we didn’t have any pop tarts. But a kind neighbor did (actually, the kind neighbor’s mom did and she went to get them for me—what a sweetheart!) Before he’d even finished his pop tart he wanted Japanese curry. Sigh. I just can’t keep up. And the dishes—oy!
Three more days of this. Friday is his last dose of steroids—at least for a while. (Friday is also his birthday, incidentally). Five more doses. Ten more milliliters. We can do this, we’re almost there. Then maybe we can get some sleep around here.
*Remember there’s a 5K fundraiser on Saturday. More info here.
That is an impressive menu!! We are so impressed with Jacob's courage and your intense love and faith!! Thanks!
ReplyDeleteLove,
The Littles
I just found this blog thanks to your mom's e-mail about the 5K. Our hearts are breaking for cute little Jacob and for both of you. I can't imagine the whirlwind you are currently living in. I do know, however, that Jacob could not ask for better parents to help him through these difficult next few years. We will definitely keep you and Jacob in our prayers. Our love to all of you, Mike and Marilyn Scott
ReplyDeleteMy son was signed it at the time -- so Pogo is actually Spencer. :)
ReplyDeleteTim Rollins just sent me a link to your blog and I just finished reading all of your posts. My heart goes out to you and your family. You are such strong people! We will be praying for you.
ReplyDeleteMuch love,
Emily (Hillman) Schmidt
My goodness! I can empathize with him and the steroid treatment (as well as anti nausea medication, which takes the edge off but works wonders). I think we need to send a care package of 4am food fest treats! Should be some good stuff in there....
ReplyDeleteHoping you all are doing well.
ReplyDeleteCheryl